What Is Lewy Body Dementia?

When someone you care about receives a diagnosis of Lewy body dementia, it's natural to have questions about what this means for their future. Understanding more about this condition can help you navigate the journey ahead with greater confidence and clarity.

This article explores what Lewy body dementia is, how to recognise its symptoms, and the treatments and support available to help people live well with the condition.

What exactly is Lewy body dementia?

Lewy body dementia occurs when tiny clumps of proteins, called Lewy bodies, develop in the brain's nerve cells. These proteins particularly affect areas responsible for thinking, movement, visual perception and regulating sleep. Named after Dr FH Lewy who first identified them, these protein deposits cause a unique set of symptoms that distinguish this condition from other forms of dementia.

In the UK, 'Lewy body dementia' encompasses two related conditions: dementia with Lewy bodies (DLB) and Parkinson's disease dementia (PDD). The key difference lies in timing – with DLB, cognitive symptoms appear before or alongside movement difficulties, whilst in PDD, movement problems typically precede cognitive changes by several years.

How common is Lewy body dementia?

Lewy body dementia accounts for approximately 10-15% of all dementia cases, though experts believe it may be under-diagnosed. It affects men and women equally and becomes more common after age 65, though younger people can also develop the condition. Greater awareness is helping more people receive accurate diagnoses and appropriate support.

Recognising the symptoms

Understanding the symptoms helps families provide better support and seek appropriate care. Each person's experience is unique, but common features include:

• Cognitive fluctuations - people may experience varying levels of alertness throughout the day. These fluctuations are distinctive to Lewy body dementia and differ from the more consistent progression seen in other types.
• Visual experiences - some people see detailed visual hallucinations of people, animals or objects. Whilst these can be unsettling, understanding their cause helps families respond with compassion and seek appropriate management strategies.
• Movement changes  - similar to Parkinson's disease, people may develop stiffness, slower movements, or balance difficulties. Physiotherapy and occupational therapy can help maintain mobility and independence.
• Sleep patterns  - REM sleep behaviour disorder, where people act out dreams, often occurs. Simple adjustments to bedtime routines and the sleeping environment can improve rest quality.

The importance of accurate diagnosis

Accurate diagnosis ensures people receive appropriate treatment and support. This is particularly crucial because individuals living with Lewy body dementia can be sensitive to certain medications commonly used for other conditions. Healthcare professionals familiar with the condition can recommend safe, effective treatments tailored to each person's needs.

Treatment and support options

Whilst there's no cure, many approaches help people live well with Lewy body dementia:

Medications 

Some Alzheimer's medications can help with cognitive symptoms and reduce hallucinations. Parkinson's medications may improve movement, though careful monitoring ensures the best balance of benefits.

Therapeutic approaches

Physiotherapy maintains mobility, whilst occupational therapy helps with daily activities. Cognitive stimulation therapy, music therapy, and meaningful activities enhance quality of life. These focus on abilities rather than limitations, promoting wellbeing and connection.

Environmental adaptations

Creating a supportive environment makes a significant difference. Good lighting, clear pathways, and familiar objects help people navigate their surroundings confidently. Establishing gentle routines provides structure whilst allowing flexibility for daily fluctuations.

How specialist care homes provide support

Quality dementia care homes like KYN understand the unique needs of people with Lewy body dementia. Our experienced teams recognise the importance of personalised care that adapts to changing symptoms throughout the day.

At KYN, we create calm, structured environments that promote independence whilst providing compassionate support. We understand the particular sensitivities associated with Lewy body dementia and tailor our approach accordingly.

Our philosophy focuses on enabling residents to live well, celebrating their abilities and supporting them through difficulties. We work collaboratively with families, providing guidance and reassurance throughout the journey.

Discover personalised dementia care with KYN

Living with Lewy body dementia presents unique difficulties, but with understanding, appropriate support, and expert care, people can continue to experience joy, connection, and quality of life. At KYN, we believe in supporting not just the person living with dementia, but their entire family.

We're here to provide expertise, compassion, and the highest standards of care, helping your loved one live as well as possible. If you'd like to learn more about how KYN can support someone living with Lewy body dementia, we'd be delighted to help. Our experienced team can answer your questions and show you how our approach makes a real difference. To arrange a conversation or visit one of our beautiful homes, contact us today.